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Help us move forward

Get involved in Forward with Dementia research

The Forward with Dementia website is new and in development, and we would like to gather feedback from people who use the website and/or participate in other Forward with Dementia activities, like webinars and education sessions.

It is important to know how the project is impacting people living with dementia, their care partners, and health and social care providers. Sharing your experience will help to inform the implementation and evaluation of the Forward with Dementia project for members of the public and health or social care providers.

The Forward with Dementia project aims to improve the communication of a dementia diagnosis and enhance the support following a diagnosis. Taking part in a survey or interview will help us to understand how the Forward with Dementia website, resources, and the overall project supported you.

There are a number of ways to participate and get involved

All website visitors

  • Complete an anonymous feedback survey about your experience using the website. It should take less than 5 minutes.

Persons living with dementia & care partners

  1. Complete an anonymous longer survey
  • This survey will take about 20 minutes.
  • This survey asks about your beliefs about dementia, your understanding about supports and services, and your experiences with the Forward with Dementia project overall.
  • Those that participate in a longer survey will be entered into a draw to win 1 of 5 gift cards valued at $50.
  • Chances of winning are dependent on the number of people who participate in the surveys, which is expected to be approximately 90 for persons living with dementia, or 180 for care partners.

2. Take part in a 30–40-minute interview about your experiences with the Forward with Dementia website and project

  • This interview asks about your knowledge, attitudes, and behaviours related to dementia and dementia care.
  • For those who participate in an interview, we are offering $25 gift cards (for a local grocery store or pharmacy) as a small thank you for your time.

Please email for more information:

Health and social care providers

Participate in a 30-40-minute interview about your experiences with the Forward with Dementia website and project

  • This interview asks about how the project may have impacted your knowledge, attitudes, and behaviours related to dementia and dementia care.
  • For those who participate in an interview, we are offering $25 gift cards (for a local grocery store or pharmacy) as a small thank you for your time.

For more information email:

If you would like to learn more

Please contact the research team at: [email protected]

You can also subscribe to the Forward with Dementia newsletter at the top of the page by clicking “Newsletter” to stay up to date on the project.

This project has received ethics clearance through a University of Waterloo Research Ethics Committee (ORE #41423).

This project has also been reviewed by the Research Ethics Board of the University of New Brunswick and is on file as REB#023-2021, and by the Research Ethics board of Horizon Health Network and is on file as #101284.

The Scientific and Research Ethics Committee from the Faculty of Medicine at McGill University has also approved this research project (IRB study number A09-B70-20A / 20-08-058).