Welcome, we are glad you are here

A little about who we are

 

Forward with Dementia was created by and for people living with dementia, carers and health and social care professionals. 

We set out to provide guidance, information and highlight available support after a diagnosis of dementia. 

The UK Team are:

Most importantly we would like to acknowledge our unnamed collaborators, the people living with dementia, carers, health care professionals, families and friends who helped develop and design Forward with dementia. And by no means least Angela Mattison for keeping all the plates spinning.

To contact the UK research team, please email: [email protected] 

Forward with Dementia was developed as part of the Cognisance research programme, an international research partnership across five countries: Australia, Canada, Netherlands, Poland and the UK. We share a common mission to better support people and families living with dementia (1999-2022).

This Phase and the International work of Cognisance was funded by the European Union (EU) Joint Programme  Neurodegenerative Disease Research (JPND), a global research initiative aimed at tackling the challenge of neurodegenerative diseases. The JPND aims to increase coordination between participating countries in research aimed at finding causes, developing cures, and identifying appropriate ways to care for those with neurodegenerative diseases. 

The World Health Organisation, Alzheimer’s Disease International and Dementia Alliance International are collaborators.

This international group was led by Scientia Professor Henry Brodaty, Project Leader, Centre for Healthy Brain Ageing (CHeBA), University of New South Wales, Sydney, Australia. ‘Forward with dementia is Trademarked in Australia.

Dr Meredith Gresham (Fellow at CheBA) is the programme manager for Cognisance. 

The international team include:

  • Professor Lee-Fay Low, University of Sydney, Australia
  • Professor Yun-Hee Jeon, University of Sydney, Australia
  • Associate Professor Lyn Phillipson, University of Wollongong, Australia
  • Professor Isabelle Vedel, McGill University, Canada
  • Associate Professor Carrie McAiney, University of Waterloo, Canada
  • Associate Professor Shelly Doucet, University of New Brunswick, Canada
  • Professor Frans Verhey, Maastricht University, Netherlands
  • Professor Joanna Rymaszewska, Wroclaw Medical University, Poland

With collaborators:

  • Ms Kate Swaffer, Dementia Alliance International
  • Ms Wendy Weidner, Alzheimer’s Disease International
  • Dr Katrin Seeher, World Health Organisation

Forward with Dementia  has been further adapted and updated in the UK with the creation of new content supported by the NIHR: This independent research was funded by the National Institute for Health & Care Research School for Social Care Research (NIHR SSCR) on behalf of the NIHR Three Schools’ Dementia Research Programme (2022-2024). The views expressed are those of the authors and not necessarily those of the NIHR SSCR, the National Institute for Health & Care Research or the Department of Health and Social Care.

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Disclaimer

The website is not intended to be a substitute for professional medical or social care advice, assessment or intervention. While the information given on this website is based on sound clinical evidence and was written and reviewed by suitably qualified health and Social Care professionals, always seek the guidance from your doctor or other qualified health professional about your specific situation or condition.
We will make every effort to ensure the availability and integrity of resources, but cannot guarantee that these will always be available, and/or free of any defects, including viruses. Users should take this into account when accessing the resources. All access and use are at the risk of the user.
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We invite you to explore this website and engage with us to make a difference in the lives of people with dementia and those who provide support.

 

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