Privacy and cookie policy

What is a privacy policy?

Forward with Dementia has been co-designed with and for people living with dementia, their families, carers or supporters, as well as health and social care professionals.  

It is the output of a research project called Cognisance funded in the UK by the Alzheimer’s Society.  It is managed and operated in the UK by University College London.


The University is committed to being transparent with the community about how it manages privacy and we have implemented measures to comply with our obligations The General Data Protection Regulation (GDPR) came into force on the 25 May 2018. All staff are bound by GDPR regulation. 

UCL also has a data protection policy that sets out our commitment to the safeguarding of personal data processed by its staff and students and our stances on compliance with data protection legislation.

You can find further information from the Information Commissioner’s Office (ICO). The ICO is the UK regulator who oversees compliance with data protection legislation. Information Commissioner’s Office Guide to the GDPR.


Collection of your personal information

The Forward with Dementia website allows for anonymous browsing and will not generally collect your personal information unless you choose to provide it by completing the online form and subscribing to the newsletter or for updates. Personal information is only collected for purposes that are directly related to and reasonably necessary for the legitimate functions and activities of the Cognisance – Forward with Dementia project

Cookies and other information collected

his website uses cookies to improve your experience.  A cookie is a small message given to your web browser by our web server.  Your browser stores this message and is sent back to this website server each time you visit the website.  Information collected using cookies includes your browser’s internet provider (IP) address, the date and time of your visit and duration of time for each webpage, the pages you accessed, and documents downloaded, and the type of browser you used.  

You can disable the acceptance of cookies by your web browser at any time. However, doing so may restrict your ability to access some web pages. 

The University uses cookies on this website for the following reasons: 

  • Essential functionality required for the website to operate correctly, including the operation of The Dementia Toolkit that allows you to collect articles and to-do items that you find useful and helpful for future reference 
  • Enabling your access to secure areas on our website and saving your preferences 
  • Analysing your activity to constantly improve your experience by showing you relevant content. 
  • Analysing the performance of the website so we can make improvements. 
  • Managing our advertising through remarketing on other websites with Google Analytics and providing you with more targeted advertising based on the information you access.

Other websites

This website may contain links to third parties’ websites. Third party websites are not subject to the University’s Privacy Policy or privacy notification statements, and the University recommends you familiarise yourself with the relevant third party’s policies.  Unless expressly advised, the University does not endorse, approve, or recommend the services or products provided on third party websites. 

Security and retention of your personal information

The University stores your personal information in systems owned and managed by the University, and in other systems under license or by agreement. Service providers of such systems are contractually bound by the University’s privacy and security requirements.  Access to your personal information is limited to university employees and contractors who have a legitimate reason to access the information.  Forward with Dementia is hosted on behalf of the University by Spencer du Bois –  

Use and disclosure of your personal information

The University will use and disclose your personal information only for the purpose(s) for which it was collected. In addition to any specific notification made to you at the time of collection, purposes include: 

  • Corresponding with you 
  • Actioning your request, inquiry, subscription 
  • Sharing information with Cognisance Consortium Partners 
  • For benchmarking, analyses, quality assurance and planning purposes 

The University will seek your consent prior to the use or disclosure of your personal information for any other purpose than as advised at the time of collection, except where that other use is authorised or required by law. If you give your consent, you may subsequently withdraw your consent in writing at any time. 

Your rights in relation to your personal information


To unsubscribe from receiving communications from the University, you can use the unsubscribe link contained in the relevant email(s) sent to you or by contacting [email protected] 

General rights to access and amendment  

You may request access to, and amendment of your personal information held by the University, including for corrections, amendment, deletions, or data portability. Any such request will be subject to any legal rights and obligations imposed upon the University to retain such information. We will only retain your personal data for as long as necessary to fulfil the purposes we collected it for, including for the purposes of satisfying any legal, accounting, or reporting requirements, and in accordance with UCL Records Retention Schedule.

If you wish to access, amend, or delete your personal information, or withdraw consent for a specific use or disclosure of your personal information, you should contact [email protected]

You can contact UCL by telephoning +44 (0)20 7679 2000 or by writing to: Data Protection Officer, UCL Gower Street, London WC1E 6BT.

If you have any questions about our privacy notice, please contact the Data Protection Officer on [email protected] University College London, Legal Services, 6th Floor, Bidborough House, London, WC1H 9BF


Still need help?

Email: [email protected]